Tags

Oakley has this sudden fascination with tags, whether it's paper tags or material tags, these tags have to be touch, tasted and then eaten. We've caught him twice with paper in his mouth, happily chewing the tags off of teddy bears or off of the dads bag, and he just looks at you with such innocent eyes to say ''this tastes nice''. Then in goes Mom's fingers fishing all the paper out, he gets cross with me, but nope can't be eating paper, silly kid. 

Today was yet another day full of smiles, and giggles. Loving all the smiles I must say. They just put everything around you into perspective like nothing else matters, and nothing does, that little smile is everything. 

After his morning nap I put him in the cot and the first thing he goes for his his music box toy, he grabs it and starts hitting it to make the music come on. He'll then do a little jiggle and give me the biggest grin. He's happy and very content when he's in his cot surrounded by all his toys. Mommy's happy boy. After Mom did some house chores, Oakley followed ''backwards'' in his walking ring, he reminds me of the tow truck from Cars (Mater), the best world backwards driver...who knows maybe he will be, but for now we'll stick to the walking ring, safer, and his Mommy can have her eyes on him at all times. He walked around our lounge backwards, and aimed for the fish tank, where he stood happily staring at the fish, and talking to them. Definitely has a attraction to water. I've noticed that when we go out and we near a fountain, his whole body will lean towards as if to say ''Mom go to the water I want to touch'', so I let him touch and he smiles. He's loved water since he was a tiny baby, it's just something he's always been connected too. Bath time is his absolute favorite time of the day. the excitement is unbearable, I pick him up and he laughs, and kicks and is just so eager to get into the water, and once in it's all splashing fun. So I definitely have a water baby on my hands. 

Anyways, by 13:00pm he was tired, I lay him down on the bed, fed him and he was fast asleep for a whole hour and a half. He woke up with the cutest little red cheeks, and a big smile, ready for some more fun with Mom. He woke up as his sister walked in the door, so you can imagine the excitement when he saw his sister was home. It just blows me away, precious child. 

So we helped the sister with her homework, he definitely loves being involved, even if it's just tickling her arm while she is writing, oops...lucky for erasers. After Petal completed her homework, we read a story together, and Oakley just stands in his walking ring listening intently to the story, very interested in what Petal and his Mom are up to. 

Then it was time for some jumping in the jolly jumper, which I must say he's definitely got the hang of after only being in it 4 times. He loves to jump, he's managed to jump so that he now rotates from one side to the other, and we play peek a boo, such fun Mom...lets to it again. 

By 18:30pm he was starting to get grumpy, because he was tired. So meds at 18:45pm with the help of his sister, and then some cuddles and kisses from his sister and then he lay down next to me, had some milk and went straight to sleep, sweet dreams little prince. 

So far so good, we are now on 15 days no seizures. 4 days no ACTH injections, and taking it all one day at a time. Just praying and hoping with all our hearts we stay on this track, because we really like this track.