Today marks 1 whole month that Oakley's been seizure free. My heart sings with joy, my little boy is doing so good. He's always smiling, always happy, and he's really becoming very, very curious about the world around him. Loving every moment. Last month this time we were anticipating to see if and how the ACTH injections would work, and will they work...and after 6 days of being on them we finally got to see the seizures/spasms stop. It was a weird feeling, because for 2 whole months every single day without fail, Oakley would have numerous episodes, and as the days went on and on they just got to be more and more and more and more intense. So on the 27th of May, the first official day of NO seizure's whatsoever, we were amazed, confused as we normally would anticipate them, knowing exactly when and how long they would last. We sat there and nothing, not one. Nothing to write down, no amounts of spasms, no times to jot down, and the best part we didn't have to take a video recording of it, I could actually lift my baby up and hold him. Whereas we used to just lay him down so he could have is seizure, leaving us feeling helpless, and me as a Mom heart broken that I couldn't do anything to stop them, or to help him. Today I held him extra tight, I enjoyed all the cuddles. I loved all the smiles, the babbles, the curiosity in his face as he takes in the world around him. My heart consumed with so much relief so much joy, my little boy is a completely different person to what he was a month ago, and I thank God every day, I thank the Doctors, the Nurses, my Family, my Friends, I thank everyone, for their continuous prayers for my little superman, I thank my Husband, my Daughter, and I thank myself. Miracles do happen, and Oakley proves it to me everyday. He is my little miracle.
He has become so mobile in his little walking ring, he loves being able to go where he wants to go. He loves following his Daddy around, and if he see's his sister and her back is to him, he'll shout and make little noises, until she turns around to see him and then he's full of smiles. He's at that stage where he's learning ''cause and effect'' and it's amazing to see how his little brain is taking what he does and then what the effect will be. Such a clever little boy he is. We gave him a lemon to hold, and of course he'll drop it as he is still getting used to holding things with those little hands, anyways, as the lemon drops he looks down and his whole face says ''Oh no, now what?'', it's so cute. So Mommy picks it up and gives it back to him, and after a while he drops it again, and again he makes that face. After 3 or 4 drops you could see that he was anticipating the lemon dropping, he tried so hard to hold them lemon, but because it was heavy, and his hands battled to grasp it, it fell, but just before it falls, he tries so hard to stop it from falling. Amazing. He just knew, and he tried to stop it. My little boy is developing so well, he's on track with what 8 month old's should be doing more a less, and that to us means more than anything else in this world. Each day with him is exciting, a new beginning, new things to learn and to take in. Just amazing.
We have to watch him though because if we open the door and then unlock the security gate he gets so excited and he charges for the door...and before you know it he's out the door and aiming for the driveway, no driveway time today as it was raining, so he was a little bit disappointed. Starting to become a speedy little driver in his little ''car''.
Tonight we put him in Petal's old high chair for the first time, and he loves it. He can bang on the table, and make a noise. I gave him some spaghetti to play with, and the faces he was making touching the spaghetti were too cute. Everything is a first for him, and so glad we as his family can experience each first with him, and enjoy it as much as he does. Feeling so blessed.
Today Petal finished the 2nd Term of school, and holidays have begun. Looking forward to lots of fun and lots of memories to be made, and lots and lots of photos.
They are now both fast asleep, getting their energy ready for tomorrow. Looking forward to the weekend with my little family. <3
We'll continue to take one day at a time, but today we celebrate a whole month seizure free, Mommy loves you my little superman. <3
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