Friday, 6 June 2014

Last ACTH Injection Today....

This morning Jason woke me up and said ''Oakley is smiling at me.'', I said '' Why did you wake him up''...hahahaha...just a few more minutes, but then as I sat up Oakley lifted his head and gave me the biggest toothless grin, to precious for words. Ok Mom's up, 06:15am lets start this day. 

After dropping Petal off at school we went straight to the hospital for Oakley's last ACTH injection, and what a brave boy he was, definitely doesn't flinch for needles at all anymore. Then we ''escaped'' out of there uttering ''goodbye hospital, hope we never see you again'', and we drove off. Oakley slept from the hospital all the way home, and then he woke up had some milk and went back to sleep right against me in the bed for a whole hour. Not a bad place to be on a very cold morning. Moments like this I'll cherish forever. So after his hour nap he woke up and we decided to make donuts, Oakley sat in his tent with all his toys, and kept himself busy, happily playing and doing a little bounce to his music, and every now and then he'd look up at me and give me a smile. Whisper (our dog) walked past and all Oakley wants to do is grab her tail, she has no idea what's coming once he starts crawling let a lone walking. Hehehehe, poor Whisper. 

Petal came home from her 1st sports day, exhausted and yet still full of energy, oh to be 7 again, and when Oakley see's her there's an instant love in his eyes for his big sister it is so amazing, she can do anything, and he'll just giggle at her, and she always gets smiles no matter what....it's just so cute. It's a very amazing bond that they both share, something they'll both treasure for years to come. 

By 14:30pm he was tired and went to sleep nicely, he slept for a good hour and 20 min. Woke up smiling again...loving these smiles, they getting bigger and happier by the day. We ended up back in the tent with all the toys, and with Petal, dancing and having fun. We then tried standing and looking at the fishes in the fish tank, very amazed by the little fishes, just wants to touch them even if it's only through the glass. 

Then Dad came home, and it was lots of laughing and giggles from both kids, Oakley loves playing silly games with his Dad. Then bath time which he absolutely loves, he's now starting to lean himself forward when we standing near the bath, in a way he's saying ''hurry up Mom, put me in the bath''...hahaha, a real water baby. 

Supper time, tummy is all full and we are ready for bed, very long day for a little boy, but it's been a good day, loved all the smiles, and special moments. 

Now we literally just take one day at a time now...praying and hoping that everything is going to be fine and that Oakley is going to be ok, this past week seeing how he's just ''come out of his shell'' if I can put it that way has been amazing, my little boy is back, smiles, laughs and that little sparkle in his eye is back. I really hope and pray it stays.....forever. Love you my little superman. 

One Day at a Time.....








 

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