...1 year seizure free...
. YAY!!!!!Having a toddler has definitely kept me busy these past few months, let me say that again, having a toddler has kept me busy these past few months and I am honestly so blessed and so thankful that he is the most energetic, most out going, most fearless 19 month old I have ever met. He's head strong and all in all one AMAZING little individual. He climbs, he toddles, he dances, he claps his hands, he knows what he wants and will come to you to help him with whatever he needs help with whether it's to open his sippy cup spout or to read him a book that he brings to you to open and go through each and every page with him, he's doing amazing, and we are so proud of him and how far he's come this past year. Considering where we were last year and doing so much research on the topic of IS, and the fear and the doubts, and the constant worry, and here we are today, just ever so thankful and ever so blessed.
From March to May back and forth between hospitals and EEG's, then MRI's and Ophthalmologists, and then more EEG's, to finally being diagnosed with IS on the 21st of May last year to having his last seizure on the 26th of May last year, and each and every day since then has been like walking on eggs, I won't lie to you it still is, but knowing he's made it to one year without seizures is a blessing, it's an amazing feeling I really can't describe. A little person who's only been on this planet or 19 months has been through so much in his young life, and knowing he's doing just fine and is growing and developing the way he should at this age, just shows us how positive his future will be....but one day at a time it shall be for us as our motto stands, it's gotten us this far, and that's definitely something worth celebrating. He might not be speaking yet, but deep down I know he understands what we are saying and deep down you can see he is communicating in his own way, and he'll speak when he's good and ready, and we look forward to that day, but for now, we are just enjoying each day with him, as each day is just a blessing getting to know him more and more.
He'll forever be known as my little Superman, because he truly is a remarkable little boy and an inspiration to us all. Keep doing what you're doing Oakley, because you're doing great.
Love you to the moon and beyond.
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