Wednesday, 27 August 2014


3 MONTHS - Seizure Free

My little superman playing hide and seek


My little superman is officially 3 months seizure free today. I feel so blessed and so thankful every day for each and every milestone he is reaching all by himself. I am in awe at each and every little thing he does. He amazes me each and every single day. Just feel so blessed and so very grateful. 

Three months ago we were in hospital and today was officially day one of no seizures...If you told me back then to look 3 months into the future I couldn't give you an exact out look, but I kept on praying, and digging deep within myself to be positive and to take each day as it comes, and that's exactly what I have done, and still continue to do to this very day. Thank You to for all those little prayers, for all those thoughts, and for all those heartfelt loves. Miracles do happen, they happen each and every day, you just got to look close enough to see them. 

Oakley is amazing. He just amazes me each and every day. His latest little thing, which I find to be the cutest thing in the world, is walking (with help from an adult), we hold him in our arms, but he just wants to be down...and once on the floor he'll start to move forward, and then walk, of course it's a killer for our backs, but the joy in his face, and the amount of energy those little legs have, who can argue. He's my little Chimpanzee. Love how he walks from the bed to the bath, then stands there holding the bath with such anticipation to get into the water, and once in the splashing fun begins. His poor sister gets so wet from head to toe at the end of the bathing session, but what fun. I think he might just skip the crawling phase all together. 

He has become a very good roller and sitter lately too. He'll lay down on his back and roll from side to side, and then sit up, turn around and do it again, he does a full 360 degree turn. A little man on a mission. The mobile days are clearly on their way...this Mommy is going to be running. Hehehee. 

He's just turned 10 months old, and he has officially got his first tooth, and not the bottom tooth, my son has his top tooth first, he definitely has his own agenda when it comes to ''normal baby life'', he's made to stand out in a crowd. :) 

 I can't believe how fast this year has gone bye, my baby boy is slowly becoming a little toddler, ready to take over the world. I'm sad that the baby stage is nearly over, but then again, he will always be my baby boy. 

On Saturday we see the Neurologist again for a check up, and see what our next plan of action is, and to see what he has to say about how Oakley is doing, and I'm sure he'll want to start weaning him off the Keppra and then the Epilem, we are nervous about that, but one step at a time. 

All in all Oakley is doing amazing. I am in such awe of him. He really is my HERO. I am just so proud of him, and at what a strong spirit he has, and what such a little fighter he is. SO PROUD of you my baby boy. 


Tuesday, 5 August 2014

Oakley's First Time on the Beach

It was Oakley's first time on the beach on Sunday, and boy did he love every single moment of being there. We placed him on the sand thinking he'll cringe at the feeling of the sand between his toes, and he surprised us and wasn't even bothered by the feeling at all. He sat there, playing with the sand between his toes as well as picking it up and playing with it in his hands, and of course we had to taste the sand just to make sure that it tastes ok, so his mouth was covered in sand, his hands were full of sand, and he just embraced it all. 


My little beach bum

After much fun in the sand, we decided to go down to the surf and feel the water. It was freezing, but he was so excited by the BIG water, that all he wanted was to be put down, those legs were just bouncing up and down with excitement. He absolutely LOVES ''splashing splashing'' (aka water). So he sat there by the surf, and watched as the waves went back and forth, very confused as to why it kept going away, he did get a little bit irritated that it kept going away, he didn't quite understand, but the moment it came to him, well.....the smiles, and the giggles, were priceless. He loved it. 




After much fun in the sea, and lots of sand all over the both of us, he was starting to get grumpy. So a quick wash in the sea, and lots of baby powder to remove the little bits of sand left behind, I changed him out of his wet clothes, and got him all dressed warmly and he was happy again, as much as he wiggled and jiggled trying to get back into the water, it was time to go. It was definitely a memory I'll cherish forever, he was in his happy place, the ocean called to him, and there's nothing better then ''splashing splashing'' in my little boys eyes.